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Crucial for health system, many caregivers are struggling financially and emotionally, report says

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They come from all walks of life, young and old: millions of Canadians who are unpaid caregivers for aging parents, children with a disability or a sibling with a chronic illness. Yet a new survey reveals many are struggling, often in isolation, trying to fulfil a critical role with not enough support from the health-care system.

Results of the Ontario-based survey of 800 caregivers aged 16 and older, released Thursday by the Change Foundation, paints a picture of people often thrown unexpectedly into a role for which they typically aren’t trained and one that has major effects on their physical and mental health, relationships and career paths.

« Family caregivers provide the vast majority of care that happens in between appointments with physicians or in between hospital stays or different interactions with the health-care system, » said Christa Haanstra of the Change Foundation, an independent health policy think-tank dedicated to enhancing patient and caregiver experiences.

« There’s a lot more health care happening in the home, provided in large part by family caregivers, » said Haanstra, noting that caregivers are often invisible in the health-care system, with their contributions going unrecognized as well as unrewarded.

« We really think about them as the glue that keeps the health-care system together. »

Financial and emotional toll

The online survey, conducted in May by the polling firm Pollara Strategic Insights, found that caregivers overall appreciated the time spent with their loved ones and believed they were improving their lives.

But 61 per cent admitted they took on the role because they believed they had no choice, with many at times feeling trapped, helpless, frustrated and overwhelmed.

The survey found 36 per cent of caregivers felt depressed and 33 per cent were resentful of their role, with almost half overall saying caregiving had negatively affected their ability to have personal time, engage in travel or enjoy a social life.

One-third said they had experienced financial costs due to caregiving, including out-of-pocket expenses, time off work and turning down career opportunities. Eight per cent lost their jobs due to caregiving responsibilities.

« Family caregivers are providing care to almost everyone — siblings, parents, children — and they cover diseases across the spectrum, » said Haanstra, who has a young child and also helps care for both her aging parents and a relative with a chronic illness.

« Obviously, the largest group is caring for people with health-care issues related to aging, Alzheimer’s being one of them, frailty being another.

« But we are also talking about providing care to people with cancer, with disabilities, mental illness, chronic diseases of many varieties and acute illness, post-injury or accident, » she said, noting that an estimated 28 per cent of Canadians over 15 have taken on a family caregiver role.

‘Completely dependent’

One of those people is 25-year-old Stephane Alexis of Orleans, Ont., near Ottawa, who helps his parents care for his younger brother Torence, who has cerebral palsy and is non-verbal.

« He’s completely dependent, he needs help with feeding, changing, even turning in bed, » Alexis said of Torence, 22. « He’s a pretty heavy dude, so there’s a good amount of lifting involved. »

Alexis, who attends a private photographic arts college, helps out after school and on weekends attending to his brother’s needs, but their relationship goes far beyond that.

« He’s completely dependent, he needs help with feeding, changing, even turning in bed, » Alexis said of Torence, 22. « He’s a pretty heavy dude, so there’s a good amount of lifting involved. » (Justin Tang/Canadian Press)

« I love my brother a lot. I love spending time with him. He’s funny, he makes me laugh. »

But Alexis admitted that even being a part-time caregiver comes at a cost. He’s often exhausted, has little time to socialize with friends, and has had to put some life goals on hold.

« I was planning on moving out [of the family home] relatively soon, but I feel like I can’t do that. I can’t leave and just let my parents fend for themselves. »

He’s frustrated there’s so little support from the health-care system: the family receives only 15 hours a week of help from two social services agencies.

« It doesn’t seem like there’s really any funding for home care. They kind of just leave you out there, » said Alexis, who believes his brother’s quality of life is « better at home » than it would be in a publicly funded residence for people with special needs.

« Why not use some of that money that you would be investing in a residence and use some of that money for home care? »

‘I was worn to a frazzle’

For Don Mahood, frustration with the health-care system began when he was trying to get a diagnosis for his wife Mary Charlotte, who had been experiencing worsening memory problems for some years, forcing the registered nurse to give up her job.

« I tried to get her diagnosed with the doctor with difficulty, » Mahood, 76, said from London, Ont.

« You’d get to the doctor and say my wife has some dementia. He would give her a test and talk to her for maybe 10 or 15 minutes and tell me she’s perfectly fine. Anyone with Alzheimer’s, especially in the early stages, can really mask it. »

Caregivers gathered at Dundas Square in Toronto in May to demand better working conditions. (CBC)

Mahood finally got a referral — a year later — to the Aging Memory Clinic in London, where doctors in 2012 confirmed his wife had Alzheimer’s.

For the next six years, Mahood was Mary Charlotte’s 24-7 caregiver, until his wife of more than 50 years was moved to a long-term care facility about a year ago.

« At the end, I had to dress her, bathe her. I had to do everything, she couldn’t brush her teeth, » he said. « When I look back, I don’t even know how I did it myself.

« I was worn to a frazzle. »

Though caring for his wife was a labour of love, the disease put an end to their plans to spend part of their retirement years in Florida. Mahood also had to give up activities such as playing hockey, and his social life faltered as long-time friends dropped by the wayside.

« So my friends became others that were going through it … I would never have survived if I hadn’t belonged to support groups. That really saved my life in a sense. »

Haanstra said such stories, along with the survey results, demonstrate that the health-care system must do more to support caregivers and make it easier for them to access existing services.

« They’re willing to do it, but we can’t just send them home with no support and no information and expect that they’re going to succeed. »

Margin of error was not applicable to the survey findings because of its online methodology, the researchers said. But the margin of error on a representative sample of 800 people would be +/- 3.5%, 19 times out of 20.

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Anglais

Nostalgia and much more with Starburst XXXtreme

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Get a taste of adventure with Starburst XXXtreme based on the legendary NetEnt Game. The nostalgic themes are sure to capture fans of the classic version as they get treated to higher intensity, better visuals, and features. The most significant element of the game is its volatility. Patience will not be an essential virtue considering the insane gameplay, and there is a lot of win potential involved. It retains the original makeup of the previous game while adding a healthy dose of adrenaline. 

Starburst Visuals and Symbols

The game is definitely more conspicuous than before. The setting happens over a 5-reel, 3-row game grid with nine fixed win lines, which function if a succession from the left to the right reel is present. Only those players that that attain the highest win per bet line are paid. From a visual standpoint, the Starburst XXXtreme slots illustrates lightning effects behind the reels, which is not surprising as it is inherited from the original version. Available themes include Classic, Jewels, and Space. The game is also available in both desktop and mobile versions, which is advantageous for players considering the global pandemic. According to Techguide, American gamers are increasingly having more engaging gaming experiences to socialize to fill the gap of in-person interaction. Starburst XXXtreme allows them to fill the social void at a time when there is so much time to be had indoors. 

Starburst XXXTreme Features

Players get to alternate on three features which are Starburst Wilds, XXXtreme Spins, and Random Wilds. The first appears on reels 2,3, or 4. When these land, they expand to cover all positions while also calculating the wins. They are also locked for a respin. If a new one hits, it also becomes locked while awarding another respin. Starburst XXXtreme offers a choice between two scenarios for a higher stake. In one scenario with a ten times stake, the Starburst Wild is set on random on reels 2,3, or 4, and a multiplier starts the respin. The second scenario, which has a 95 times stake, starts with two guaranteed starburst wilds on reels 2,3, or 4. it also plays out using respin game sequence and features. The game also increases the potential with the Random Wilds feature to add Starburst Wilds to a vacant reel at the end of a spin. Every Starburst Wild gives a random multiplier with potential wins of x2, x3, x5, x10, x25, x50, x100, or even x150.

The new feature is sure to be a big hit with the gaming market as online gambling has shown significant growth during the lockdown. AdAge indicates the current casino customer base is an estimated one in five Americans, so Starburst XXXtreme’s additional features will achieve considerable popularity. 

What We Think About The Game

The gambling market has continued to diversify post-pandemic, so it is one of the most opportune times to release an online casino-based game. Thankfully Starburst XXXtreme features eye-catching visuals, including the jewels and space themes. These attract audience participation and make the gameplay inviting. The game also has a nostalgic edge. The previous NetEnt iteration featured similar visuals and gameplay, so the audience has some familiarity with it. The producers have revamped this version by tweaking the features to improve the volatility and engagement. 

That is characterized by the potential win cap of 200,000 times the bet. Starburst XXXtreme does not just give betting alternatives for players that want to go big. The increase of multipliers also provides a great experience. If the respins in the previous version were great, knowing that multipliers can go hundreds of times overtakes the game to a new level. 

Players should get excited about this offering. All of the features can be triggered within a single spin. Whether one plays the standard game or takes the XXXtreme spin route, it is possible to activate all of the features. Of course, the potential 200,000 times potential is a huge carrot. However, the bet size is probably going to be restricted and vary depending on the casino. It is also worth pointing out that a malfunction during the gameplay will void all of the payouts and progress. Overall, the game itself has been designed to provide a capped win of 200,000 times the original bet. 

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Anglais

‘We’re back’: Montreal festival promoters happy to return but looking to next year

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In downtown Montreal, it’s festival season.

In the city’s entertainment district, a musical act was conducting a sound check on stage Friday evening — the second day of the French-language version of the renowned Just For Laughs comedy festival. Tickets for many of the festival’s free outdoor shows — limited by COVID-19 regulations — were sold out.

Two blocks away, more than 100 people were watching an acoustic performance by the Isaac Neto Trio — part of the last weekend of the Festival International Nuits d’Afrique, a celebration of music from the African continent and the African diaspora.

With COVID-19 restrictions continuing to limit capacity, festival organizers say they’re glad to be back but looking forward to next year when they hope border restrictions and capacity limits won’t affect their plans.

Charles Décarie, Just For Laughs’ CEO and president, said this is a “transition year.”

“Even though we have major constraints from the public health group in Montreal, we’ve managed to design a festival that can navigate through those constraints,” Décarie said.

The French-language Juste pour rire festival began on July 15 and is followed by the English-language festival until July 31.

When planning began in February and March, Décarie said, organizers came up with a variety of scenarios for different crowd sizes, ranging from no spectators to 50 per cent of usual capacity.

“You’ve got to build scenarios,” he said. “You do have to plan a little bit more than usual because you have to have alternatives.”

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Anglais

MELS new major movie studio to be built in Montreal

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MONTREAL — MELS Studios will build a new film studio in Montreal, filling some of the gap in supply to meet the demand of Hollywood productions.

MELS president Martin Carrier said on Friday that MELS 4 studio construction will begin « as soon as possible », either in the fall or winter of next year. The studio could host productions as early as spring 2023.

The total investment for the project is $76 million, with the Quebec government contributing a $25 million loan. The project will create 110 jobs, according to the company.

The TVA Group subsidiary’s project will enable it to stand out « even more » internationally, according to Quebecor president and CEO Pierre Karl Péladeau. In the past, MELS Studios has hosted several major productions, including chapters of the X-Men franchise. The next Transformers movie is shooting this summer in Montreal.

Péladeau insisted that local cultural productions would also benefit from the new facility, adding that the studio ensures foreign revenues and to showcase talent and maintain an industry of Quebec producers.

STUDIO SHORTAGE

The film industry is cramped in Montreal.

According to a report published last May by the Bureau du cinéma et de la télévision du Québec (BCTQ), there is a shortage of nearly 400,000 square feet of studio space.

With the addition of MELS 4, which will be 160,000 square feet, the company is filling part of the gap.

Carrier admitted that he has had to turn down contracts because of the lack of space, representing missed opportunities of « tens of millions of dollars, not only for MELS, but also for the Quebec economy. »

« Montreal’s expertise is in high demand, » said Montreal Mayor Valérie Plante, who was present at the announcement.

She said she received great testimonials from « Netflix, Disney, HBO and company » during an economic mission to Los Angeles in 2019.

« What stands out is that they love Montreal because of its expertise, knowledge and beauty. We need more space, like MELS 4, » she said.

There is still not enough capacity in Quebec, acknowledged Minister of Finance, the Economy and Innovation Eric Girard.

« It is certain that the government is concerned about fairness and balance, so if other requests come in, we will study them with the same seriousness as we have studied this one, » he said.

Grandé Studios is the second-largest player in the industry. Last May, the company said it had expansion plans that should begin in 2022. Investissement Québec and Bell are minority shareholders in the company.

For its part, MELS will have 400,000 square feet of production space once MELS 4 is completed. The company employs 450 people in Quebec and offers a range of services including studio and equipment rentals, image and sound postproduction, visual effects and a virtual production platform.

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